Talking About Ulcerative Colitis
It should be completely up to you if, when, how, and how much you want to open up about your condition, and to whom.
Talking About UC with Others
People may notice changes and ask questions, usually out of concern. Thinking ahead can help you feel more prepared.
Your face and body
People may ask about changes they notice, for example weight gain or a fuller face. These can be side effects of corticosteroids.
Less energy in sport
You may be asked why you seem to have less energy in sport, possibly due to a flare-up or anemia.
Missing school
People may wonder why you have been missing school or activities.
Talking About UC in School and at Work
Opening up to school administration or employers might make sense in some situations.
Speaking up is how you get what you need. If UC is affecting school, college or work, say so and ask about accommodations, that is what they are there for.
At school or college
A 504 plan sets out adjustments so you can keep up with your peers, like missing class for appointments, using the bathroom whenever you need to, or extra time for tests. An IEP (Individualized Education Program) goes further and changes what and how you are taught. It is less common with UC.
More on both, and how they change once you start college, in Transition Into Adult Care chapter.
At work
You do not have to bring up your UC in a job interview, and it is usually better not to. Interviews are about your qualifications. Once you have an offer, you can raise any accommodations you need.