Chapter 12 · Your Voice

Talking About Ulcerative Colitis

It should be completely up to you if, when, how, and how much you want to open up about your condition — and to whom.

Some people — like your parents, siblings, or your medical team — will need to know more about your symptoms and life and challenges. Other people don’t need to know as much. Never feel pressured to share information you are not comfortable with.

Talking About UC with Others

People may notice changes and ask questions — usually out of concern. Thinking ahead can help you feel more prepared.

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Your puffy face

People may ask about your puffy face — this can be a side effect of corticosteroids.

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Less energy in sport

You may be asked why you seem to have less energy in sport — possibly due to a flare-up or anemia.

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Missing school

People may wonder why you have been missing school or activities.

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It’s okay to feel a lot Being diagnosed with a chronic disease like ulcerative colitis can make you feel sad, anxious, or even depressed at times. This is completely normal. Coping with a chronic condition is hard, so don’t feel bad or ashamed about seeking extra help. Talk to your medical team about ways to support your mental health.

Talking About UC in School and at Work

Opening up to school administration or employers might make sense in some situations.

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504 Plan

In schools or college, a 504 plan is designed to help you be as successful as your peers without a chronic condition. It might make it easier to:

Miss school for doctor appointments
Access the bathrooms during class
Get extra time for tests

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IEP Plan

IEP (Individualized Education Program) plans are less common for individuals with ulcerative colitis, but they can provide specific educational modifications based on your individual needs.

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Job interviews When you apply for a job, it’s not necessary — and perhaps not advisable — to discuss your ulcerative colitis during the interview. Job interviews should focus on your qualifications. Once you’ve received a job offer, you can discuss any accommodations you might need.

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Your rights are protected Under Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act of 1990, employers are not allowed to discriminate against you because of your condition.

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If any symptom is worrying you, contact your medical team. TeenHealthInsight is a health education resource — not a substitute for medical advice, diagnosis, or treatment from your doctor or gastroenterologist.

Want a quick recap?

Explore Ulcerative Colitis — myths and facts, symptom explorer, flashcards, quizzes, transition and travel checklists, and much more.

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